Wednesday, December 10, 2014

ENT & Neurosurgeon

It took about a week to get appointments made for Addison's referrals. The ENT was relatively easy to get in to. Once we arrived we did the usual new patient paperwork and answered questions about Addison's ear history. Her pediatrician was concerned with excess wax build up in her ear. The ENT doctor didn't notice an excess amount of wax. He did however remind me that she is suppose to get looked at every 6 months until her tubes are out (rather they fall out or have to be surgically removed.) We were only a month behind so I didn't feel too bad. I just need to remember to get her looked at again in June. The ENT said her tubes are in place and looking good.  He said they should stay in for about 2 years before they need to be removed. Such a relief to have one appointment off our list.

The second appointment was to the pediatrics neuro surgery office. Her pediatrician was concerned with the size and shape of Addison's head. She has been in the 99.99% since 9 months old. Her head also pushes forward. The neurosurgeon was much harder to get into. We ended up getting squeezed in 2 weeks after the initial request. Addison weighed in at 21 lbs 8 oz at 16 months. I am thinking their scale may be a little off. I cant imagine her growing 1 pound 7 oz in just 3 weeks. The doctor is concerned that Addison may have 1 or 2 conditions going on. The first is craniosynostosis which is premature closing of the skull bones. Since her head is large in the front she checked the back to see if anything felt closed. She couldn't say for certain either way. If one did close then surgery would be involved to correct. The second condition is hydocephalus which is water on the brain. This could be inside or outside the skull. If it's outside the skull then we wont need to do anything. If it's inside the skull there would be surgery involved to correct. Addison had some softness on her forehead but otherwise it's hard to visually see. The doctor ordered a CT scan. The scan will show very clearly if Addison has either condition. We are still waiting for the office to call and schedule the appointment. We should have our answers and plan of action by Christmas.

Overall Addison is a healthy girl. She is hitting all her milestones and seems happy. We are hopefully that once all the testing is done it will show she just had a big head (smart girl.)

Wednesday, December 3, 2014

November

Opps where did you go November????

The first weekend in November the girls and I did our weekend drive to San Diego. Alexa gets sooo excited when we go to visit Justin. We did some house hunting and general driving around to learn different areas. Alexa and Justin took a Daddy/Daughter date to "Nickles." Alexa came back super excited and even brought a gift for Addison. Since this date she has requested to go back several times. I don't think she has grasp the concept of location. Hopefully we can take her back to the arcade once we move to San Diego. On our way back to Arizona we came across a major accident. Unfortunately this was on a road that has no exits for 39 miles. I made the decision to turn around. It added an hour and a half to our trip. Alexa was sooo worried she would miss Cubbies. She ended up being 45 minutes late but I am glad she was able to go for a little bit. She is really determined to get her perfect attendance this quarter.

During November Alexa started showing signs of missing Justin. Her teacher noticed she was not wanting to participate as much. At home she started testing her limits and blaming all her behaviors on "missing Daddy." We are all doing our best to make sure this transition is the easiest it can be on Alexa. Unfortunately it is a big change and she is going to experience some heart ache.

Addison had her 15 month well visit. She is hitting all her milestones and growing quickly. She is even moving up in the percentiles. Her doctor was unable to locate the tubes in her ears. We are going to the ENT early next month to get them checked. We are praying that they are both in place. The doctor is also concerned about her head. It is quite large and showing some frontal lobe irregularities. Her neuro surgery appointment isn't until the middle of December. I am going nuts thinking about the wait.

Thanksgiving weekend was a great 4 day weekend for our family. Addison learned to play Hungry, Hungry Hippos for the first time. Alexa helped me with some baking. We did a little shopping for our new Christmas PJ's. Justin wanted matching family ones for our trip to the Grand Canyon.

Alexa finished up her swim lessons in Arizona. She has been swimming twice a week since July. She now swims above and below the water with decent form. She is comfortable entering and exciting the pool of any depth. She loves to do flips and dive for rings. We will be putting her back into lessons in a few months. She really loves to be in the water & I want to make sure she has that opportunity.

Alexa still has 2 more weeks of gymnastics. She has bounced between a few different classes at the same gym. Since August she has learned to do a proper front roll, a beginner back roll & several new techniques. I think her favorite things are the trampoline, bars & floor toys. She prefers the open gym sessions over structured classes. We try to do both each week when the schedule allows us to. She is currently in the last preschool level of gymnastics. She will move into level 1 shortly.

December is a busy month for us (and probably everyone). We are looking forward to lots of family time & then moving in just a few weeks.