ENT & Neurosurgeon

It took about a week to get appointments made for Addison's referrals. The ENT was relatively easy to get in to. Once we arrived we did the usual new patient paperwork and answered questions about Addison's ear history. Her pediatrician was concerned with excess wax build up in her ear. The ENT doctor didn't notice an excess amount of wax. He did however remind me that she is suppose to get looked at every 6 months until her tubes are out (rather they fall out or have to be surgically removed.) We were only a month behind so I didn't feel too bad. I just need to remember to get her looked at again in June. The ENT said her tubes are in place and looking good.  He said they should stay in for about 2 years before they need to be removed. Such a relief to have one appointment off our list.

The second appointment was to the pediatrics neuro surgery office. Her pediatrician was concerned with the size and shape of Addison's head. She has been in the 99.99% since 9 months old. Her head also pushes forward. The neurosurgeon was much harder to get into. We ended up getting squeezed in 2 weeks after the initial request. Addison weighed in at 21 lbs 8 oz at 16 months. I am thinking their scale may be a little off. I cant imagine her growing 1 pound 7 oz in just 3 weeks. The doctor is concerned that Addison may have 1 or 2 conditions going on. The first is craniosynostosis which is premature closing of the skull bones. Since her head is large in the front she checked the back to see if anything felt closed. She couldn't say for certain either way. If one did close then surgery would be involved to correct. The second condition is hydocephalus which is water on the brain. This could be inside or outside the skull. If it's outside the skull then we wont need to do anything. If it's inside the skull there would be surgery involved to correct. Addison had some softness on her forehead but otherwise it's hard to visually see. The doctor ordered a CT scan. The scan will show very clearly if Addison has either condition. We are still waiting for the office to call and schedule the appointment. We should have our answers and plan of action by Christmas.

Overall Addison is a healthy girl. She is hitting all her milestones and seems happy. We are hopefully that once all the testing is done it will show she just had a big head (smart girl.)